Jones Family

Jones Family
November 2009

Wednesday, October 7, 2009

Tests & Thank-You's

A big thank you to everyone who came out to Chick-fil-A tonight. We loved hearing thru texts, calls, how much love was floating around there...and chicken! Thanks for eating chicken for Brayden. Thank you to the most awesome group of friends for all of your work and involvement and time away from your families to be there tonight on behalf of our family. Thank you to my mom for being there to show everyone love from us and for us. Thank you to all the crew from Chick-fil-A for all your work, your kindness, and your hospitality. Thank you to Chick-fil-A for your generosity. I can't wait until we can do a thank-you celebration and have Brayden there to see everyone in person.

Tomorrow is a big day. Brayden will have his EKG and Echo cardiogram tomorrow. We're praying his heart is free from damage or impact as a result of the chemo meds. We also pray that if he's released to continue with the aggressive chemo meds on Monday, that his heart will remain protected from the damage and side effects the drugs warn against.

Here's a few quick pics from Little Rock last week. This is the last bag of this 1 chemo med from the long list of many he's gotten and will continue to have over the next 3 years. But getting to cross this one off the list was particularly exciting. It was this med (High-Dose Methotrexate) that came with a 4-day hospital stay with each dose and definitely caused nausea, loss of appetite, but more than anything, the regular use of a urinal and TOO MUCH WATER! Brayden was giving the thumbs-up celebrating the last bag being finished. Each bag looked so daunting. He would have 2 bags, each one running over 12 hours, and they were HUGE bags of chemo meds. Very daunting to see them first set it up...

There are many more chemo regimens to come but we're thankful to be able to again say good-bye to another 2-month block of treatment and get closer to the Maintenance phase and those chemo meds.

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