Jones Family

Jones Family
November 2009

Monday, September 26, 2011

September...Childhood Cancer Awareness Month


We didn't know Brayden's video was on the Arkansas Children's Hospital website! For their Oncology page, they highlighted Brayden's story for this month and, wow, what an honor. He had some kudos during our trip there for treatment last week and was thinking how cool that he was on there!

His last update looked good. He'd had a hard week the week before with a lot more nausea, headaches, stomach pains, leg pain and just overall feeling horribly to where he wasn't having his meals or able to rest. We were going back to the old days of back to back medicine and not letting the anti-nausea meds wear off. We were really so worried. He'd been doing well for so long and getting thrown back into worry with what was going on was so overwhelming. Were the cells back in his brain? Was something else going on under the surface? It was almost a relief to have another mom in the waiting room ask me the same question while at ACH. Her little one, diagnosed a month before Brayden, was experiecing the same things and she wondered if Brayden was! We both asked Dr. S about it and sure enough, it's more common than we realized. After 2 years of so much chemo, it kind of catches up with their bodies. We hate that he's had some tougher times but so relieved to hear everything looked okay. We were definitely excited to be reminded that within 2 months of his last treatment how much better he's going to feel! We're hoping that some new meds and some change-ups will help Brayden feel better and help endure these harder times. So another month down...truding on!

Be reminded of so many who are fighting and how many families are affected...over 12,000 families each year being given that awful cancer diagnosis for their little ones. One year...our hearts still ache for those who've lost their battle and we stand beside those who continue their fight. Help remember them in prayer...and as Brayden said, keep praying that a cure can finally be found.

3 comments:

  1. Lisa,

    How is Brayden? Juli was asking about him the other day and would like an update if possible. We are praying for you guys. Jay Hill (my email is jmhilljr@cox.net)

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  2. Brayden, I don't know if you remember me or not, it's Isabelle. I wouldn't know if you remembered me or not because I haven't seen you in almost three years. How are you doing? We are always praying for you and your family. I want to see you, but when I went back to ACA they said you left. How is your family? I hope you're doing well. I pray you have a blessed year Brayden, may the force be with you!

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  3. Hey Brayden it's Isabelle Johnston. I know I haven't spoken to you in a while but I have had a lot of time to think about you. I know Lily is still horrible and Erin and I aren't really friends anymore. I hope you're doing better than I. love, Isabelle.

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