Jones Family

Jones Family
November 2009

Tuesday, November 24, 2009

We need YOU!!

So many have asked us how they can help or what they can do...here's what we're asking. So many of you can give us and others an amazing gift - the gift of life in donating blood. It wasn't until we were sitting next to Brayden's bed hearing that he'd need to have a blood transfusion and the words that the nurse would 'check to see' if there was blood to match to give him that we realized how critical this can be. Check to see? That is so scary! SO many Oncology kids rely on blood transfusions after the effects of chemotherapy has wreaked havoc on their bone marrow and burned it out from beginning to make it's own blood. They rely on blood from donors just like you to get them through****Please sign up and encourage others to as well! We'd love to help spread the word to encourage others to give back this season!**** If you aren't local to participate in this drive, please give blood in your area. You can still give on behalf of Brayden's drive when mentioning his name. Read more to hear about Brayden's Blood Drive and the goal we have to help others this Christmas!

In this season of thanks, we have recognized how much we have to be thankful for this year. We want to find a way to give back and help so many other families this holiday season. What better way than giving the gift of life? As a way to help so many other Oncology kiddos and parents fighting, we have set up a Blood Drive in Brayden's name December 16th. What's great is this only takes a minute to visit the link and sign up to make an appointment! Simply make the appointment to give back in giving life to donate blood to help in times where there simply isn't enough supply to help these critical patients that can literally make the difference in their fight. www.givelife.org - code 72712. Location: Bentonville Plaza, December 16th. Once you logon, there are directions for the Bentonville Plaza and appointment times to choose from. PLEASE SIGN UP TODAY! We have a goal of 50 donors, but we'd love to have more!! I know you can help us come together for a great turnout to support Brayden's fight and help so many other children. Thank you all in advance for giving so freely of something that each of you have that can save a life!
Bryan, Lisa & Brayden Jones
jonesfam4877@att.net

~ To read more about Brayden's Journey, see the attachment and read below ~

Brayden's T-Cell ALL diagnosis on April 22 this year stunned all of us in a boy who rarely got sick and was so healthy and energetic. This rare form of Leukemia has had him on an aggressive High-Risk Chemo regimen for nearly 7 months now. It's kept Brayden from school, getting to go out to eat or to a store, playing football or soccer again, and even from contact with his family due to the havoc it wreaks on his system to break down all the bad cells and begin re-building again. We've been so grateful for encouraging emails and cards of support from friends and community members. There have certainly been some dark days: grieving the loss of innocence in our sweet 9-yr old boy, the loss of normalcy, the loss of Brayden's hair and his involvement with his friends, celebrating too many holidays in strict isolation at home without family,and the realization that for the past 7 months and next 3 years, trips to Children's Hospital, isolation for his health and being immune-compromised, Chemo, blood transfusions, and weekly blood checks are our new way of life to help him kick Leukemia and get him back to playing football again! He's done so well on this aggressive protocol and we're thankful for a 78% success rate where so many childhood cancer treatment plans aren't so successful. There are many risks he faces for the rest of his life, including developing secondary cancers as a result of treating the Leukemia. We continue to hold strong to our foundation of faith and continue pressing on in this Journey we are now on as a family. In the meantime, Brayden is so strong and truly resilient. We're so thankful he's kept his sense of humor and his beautiful outlook on life. Thank you for coming here and joining us to hear more about how Brayden's doing and read more recent (detailed!) updates.

2 comments:

  1. HEY BRAYDEN I JUST GOT BACK FROM LITTLE ROCK FOR THANKSGIVING.I REALLY CAN NOT BELEIVE IT BUT I AM WATCHING FOOTBALL.THE RAZORBACKS ARE JUST PLAYING LSU.LSU JUST GOT A FOUL FOR HELMITING THE HOGS.WELL ANYWAYS WATCHING FOOTBALL MADE ME THINK OF YOU.WATS YOUR FAVORITE FOOTBALL TEAM?GOOD NEWS RAZORBACKS JUST WON!I MADE A CARD FOR YOU I HOPE I CAN GET IT TO YOU SOON.YOUR FRIEND,JULI.

    ReplyDelete
  2. Woke up thinking about you again, my sweet Brayden! I know how you love seeing posts on your "bloggie", & since I don't want to call you & perhaps wake you (which I would feel horribly guilty for - since you all don't get enough sleep as it is),....I decided to type you a little love note on here instead.

    I hope you know how very, very, very much Nini loves you, Bray? I go to sleep thinking about you & I wake up thinking about you. (And, your mommy too, of course). I know you hate it when your counts are low & you can't see anyone,....cuz, I hate it too! But, let's just look forward to the next time when we can see each other, k?

    In the meantime, please ask Mommy to give you a kissie & hug from Nini, k? And, then will you please give your amazing Mom a hug & kiss from me too?

    Loving you with all my heart,

    Nini Ga-Ga (lol)

    ReplyDelete